Posts tagged ‘health care’

An Open Letter to Ann Romney


Stop it.
Stop it right now.

Stop using your illnesses as a campaign issue if you’re never once going to talk about the need to further awareness or the need to raise money for research or for anything other than furthering your own selfish agenda — all the while denying you are doing anything of the sort.

It’s disgusting.
So, stop it.

Because what you’re using it to snag is the White House. And the White House is the residence of the most prominent public servant in the United States. But public service is most assuredly not what you are advocating with the Ann Romney Pity Party Road Show.

The ME ME ME interview-train you are steering into seemingly any and every station with a broadcast signal or rag with publication privileges has steered very clear of any meaningful discussion of what real illness really does to real people.

But then it kind of has to, doesn’t it, Ann.

Because you wouldn’t know about any of that.

Because your situation is not representative of what real illness really does to real people.

Trust me, I know.
Because I am a real person really affected by real illness and I’m tired of your act.

I am Multiple Sclerosis – each and every day since my diagnosis on May 15, 2009.

I am also married with a mortgage, a full-time (and then some) corporate manager, and I am in the game.
And I — like the mostly 400,000 other Americans living, dealing and coping with the real realities of Multiple Sclerosis — do it all every day without spinning my sad tale of woe to manipulate situations for my own personal gains.

Because that’s disgusting.
So, stop it.

“I want people to believe in their hearts that we know what it is like to struggle,” you said this past Sunday on NBC’s ‘Meet The Press’. ” … our struggles have not been financial, but they’ve been with health and with difficulties in different things in life.”

Ann?
If you can lament MS as your ‘cruel teacher’ yet have absolutely no comprehension of financial hardship that often goes hand-in-hand with long-term and/or incurable illness, then I once more must advise you to stop it. Stop it right now.

No one begrudges you — or your husband — your success.
That is not what this is about.

The dream, the promise and the hopeful realization of financial success is part of the very foundation of our country.
Congrats on making it.

What this is about is that you put yourself front-and-center and go on and on (and on and on) about your struggles with MS and how you “don’t know how much is it going to chew me up and spit me out?” … and you, like the rest of us wonder “How sick am I going to get? … Am I going to be in a wheelchair?” … and you, like the rest of us, know “It’s a very, very frightening place to be.” … yet you never once ever (ever!) talk about why all of that is why we need to bring the issue to the forefront, to make health care a true and meaningful part of a national discussion, to raise awareness, to raise money for research, to find a cure (because we could) — for it and all of the many other diseases out there for which there is no cure, little money, even less discussion and scant hope … and so on and so forth.

What this is about is that you, Ann, are in the perfect position to do just that.
But you never talk about the bigger picture.
You never speak of or to the greater good.
Ever.

Shame on you!


It’s just the never ending Ann Romney Pity Party Road Show.
A true story about Ann Romney.
Starring Ann Romney.
Talking only about Ann Romney.

So, do not attempt to class yourself with me or other folks like me when it comes to Multiple Sclerosis.
Ever.

Because ‘The Hug’, the skin flips, eye jumbles, pulls, seizures, spasticity, word fishing, fog, falling, paralyzing fatigue, constant pain, more than occasional Krueger Claw and all of the other ruthless physical and emotional realities of daily life with MS are but a part of the conversation that speaks to that bigger picture you don’t talk about.

That bigger picture that, for the rest of us includes things like:
The worry over what to do about work when you can’t walk or think.
::: You don’t work, so this is not something that weighs heavily on your mind. Why talk about it, right? That’s not your MS. :::

The fear your colleagues will find out and feel you’re suddenly ‘less than’ capable.
::: Your colleagues on the campaign eagerly have you play the victim card, so this is not fundamentally significant to you. Why talk about it, right? That’s not your MS. :::

The financial stranglehold imposed by uncovered insurance costs.
::: We all know that ‘financial struggles’ are not intrinsic to your way of life. Why talk about it, right? That’s not your MS. :::

And so much more I don’t need to get into here because why talk about it, right, Ann? That’s not your MS.

But it is mine.

My MS means nearly $4,000 every month for just 4 Avonex injections (that’s just a one-month supply, Ann).

My MS means as much as $5,000 twice a year for brain or cervical spine MRIs to monitor my progression.

My MS means feeling helpless and very, very (very) scared when people I know and care about die from MS.

People like Dan Aronie …

People like my high school classmate Clay …

Oh but that’s just my MS, Ann.

Not yours.

And I know you don’t concern yourself with those things not Ann Romney.
::: Choo Choo!! And the Ann Romney Pity Party Road Show MUST go on! :::

Ann, I don’t doubt that you do you understand a small smidge of the physical plight the rest of us MS patients endure, but you cannot even begin to understand what it is like to live with (and in spite of) the rest.

So do not try to ‘relate’ to me, girlfriend. ‘kay?

~~~~~~~~~~~~~~~~~~~~~~~~~
I am a working professional living with (and paying for) MS … and I approved this message.
~~~~~~~~~~~~~~~~~~~~~~~~~

::: and I don’t really care what you think about it, Ann :::

Advertisements

September 18, 2012 at 6:23 pm 8 comments

Teabonics



extremey sad 4 U 😦


Well ok, but if you come after the magititions – that’s where I draw the line!


Proud product of the Texas public education system!


If you insisticate


And here I always though sociapaths were all for sociazed shit! Who knew!

MORE

April 2, 2010 at 10:00 am 3 comments

Prayz Jezuz


Oh Mississippi – you assbackward bumbled bunch of statehood, you … how you do amuse me.

PROfoUnDLY plodding through life last among all states when it comes to health care and tirelessly trolling the bottom waters of public education — that ‘We’re Number ONE!’ flag you fly as the fattest in our federation now has company!

WOO HOO!!!

A new study from the fine folks over at the Pew Research Center says you, Mississippi, are also Numero Uno among the God Squad of American states.

That’s right, homegirl — you’re tops in two! Whoddathunkit?!

Pew’s Forum on Religion & Public Life used polling data in four categories to rank states for the survey: the importance of religion in people’s lives; frequency of attendance at worship services; frequency of prayer; and absolute certainty of belief in God.

Mississippi — sanctimonious little slut that you are — stood out on all four measures.

SUPERACHIEVERY SPECIALICIOUSNESS!!!

Eighty-two percent of the ‘Sippians said religion is very important in their lives.
::: yeah, but so are hamhocks and backfat … :::

Sixty percent said they attend religious services at least once a week.
::: well, I ‘spect it’s easier than math homework … :::

Seventy percent said they prayed at least once every day.
::: after they go Wal-Mart’n, that is … :::

And a whopping, supreme among all states ninety-one percent of Magnolia Staters said they believe in God with absolute certainty … which no one can dispute is a fucking goddamn miracle considering how amazingly alarmingly little else they know with absolute certainty.

Oh yeah — ya ain’t done shit in this life, girl, but theyz rewahhdz a’comin’ in the afterlife!
HOOooooooodawgeez!

December 30, 2009 at 11:17 am 5 comments

Butt … wait!


Congratulations Floridians – you’re one freedom fewer!
😦

The Florida Department of Health has ruled – albeit reluctantly – that once you sign a medical procedure consent form you can’t stop the procedure once it’s begun … even, say ohhhh I don’t know — when the ANESTHESIA wears off?!?

That’s right, kiddies!
You get to grimace and bear it.
::: Just say ‘oh no!’ :::

Just ask the 61-year-old Pasco County woman who filed a formal complaint after gastroenterologist Kozhimala John refused to stop a colonoscopy after her anesthesia wore off and she was quite literally begging him to halt the procedure.

Investigative records of the May 2008 incident show the colonoscopy was underway when the sedation, a common mix of Versed and Fentanyl, wore off. Records show the patient told the doctor that he was hurting her and pleaded for him to stop.

He didn’t.

“Please stop!” she insisted, while the nurse tried to shush her, records show.

He didn’t.

“Most people would say: ‘I didn’t really mean for you to stop the procedure even though I told you to…’ She was under sedation,” John said. “I couldn’t take her words for sure.”
::: I bet you took her co-pay and insurance for sure though, eh doc? :::

After the complaint was filed, DOH lawyers (get the irony??) tried to find some clause — any clause — in the Medical Practice Act that would apply in cases like this.

They didn’t.

John, who is board-certified in internal medicine and gastroenterology, was charged only with inadequate record-keeping for failing to document the many ways the colonoscopy went awry.

He accepted a reprimand, a $15,000 fine, agreed to perform 100 hours of community service and take a course on “risk management.”

When the Board of Medicine heard the case in Orlando earlier this month, some members fumed about the state dropping the more serious accusation.

“There was unnecessary suffering inflicted,” DOH prosecutor Robert A. Milne told the Florida Board of Medicine recently, “but we had to (drop the charges) for legal reasons.”

Donald Mullins, one of three non-physicians on the 15-member board, spoke sharply to John. “It’s her body. She needed to make the decision. These were not your decisions to make … I’m disgusted that we’re going to (accept the settlement). I just can’t believe it!”

Miami pediatrician Onelia Lage said John displayed too little regard for the wishes of his patient. “Regardless of the legalities, when the patient screamed and said, ‘No!, you needed to listen.”

Maybe he will … maybe he won’t, but one thing’s for sure … he doesn’t really have to …

… and apparently, Floridians, neither does your doctor …

SOURCE

December 17, 2009 at 11:12 am 1 comment

Senator Badass (D-MN)


… at least someone’s read the bill …

December 16, 2009 at 11:07 am 1 comment

Welcome back! Now get to work!


As Congress prepares to return to work after the holiday break, I’m curious to see what the Senate does with the health care reform bill debate.

And by curious I mean I hope they don’t freefall into a stagnant mess of rhetoric, rumor and ridiculousness but actually and frealz engage in the kind of serious debate that can move this issue toward a meaningful conclusion for everyone.

HAHAHAHAHA!!!
Oh, I know … très amusant but hey, stranger things could happen, right?
I mean, it could happen in a half-life alternate universe where elected officials actually do the work of the job they were chosen to do, right?

November 30, 2009 at 11:10 am 2 comments

House rules


Oh sure, the health care bill thankfully passed the house, but only on a very narrow 220-215 vote.
But eh, given the way these mo’s work shit out, it’s a wonder anything gets done!

Get ready for the five most frustrating minutes I’ll ever give you …

November 9, 2009 at 10:26 am 2 comments

Older Posts


This is the shit you bitches are reading


Creative Commons License
Lifeisacookie is licensed under a Creative Commons Attribution 3.0 United States License.


%d bloggers like this: